Monday, March 17, 2014

Survivors

Minnie Hines-Chen

Living and loving every day


Minnie Hines-Chen
Minnie Hines-Chen
"Women your age don't get breast cancer," someone told Minnie Hines-Chen when she found a lump in her breast during her first year of college. But at the end of her second year, she was diagnosed with the disease. And just a few weeks later, she was accepted into nursing school.
Determined not to waste energy on anger, fear, or resentment, Minnie chose to have a bilateral mastectomy and an intense chemotherapy regimen so she could get back on track with schooling as soon as possible. "There was only room for one enemy in this battle," she says, "and I knew I needed all my strength to conquer it."
"Being only 20 years old, all the breast cancer survivors I met were older. But it was nice," she says, "because I had strong ladies to look up to, and our shared experience opened up doors and relationships that I never knew existed."
Minnie also had good friends keeping her busy, and her strong will helped her mom keep the faith that her daughter would make it through.

I’m here and able
and that’s what
matters most.
As soon as she was able, Minnie began telling her story and educating others about her experience. She began speaking at conferences and became a Reach to Recovery volunteer to encourage newly diagnosed patients.
Minnie says that she still deals with the stigma associated with cancer. "So many people are uneducated about the disease and the wonderful people who are fighting it every day," she says. "I'm glad I can bring wisdom to those around me. I still have scars from my chemo port, mastectomy, and reconstruction. But I'm here and able, and that's what matters most."
Minnie reached her goal of becoming a nurse and always keeps her positive attitude, despite the long-term effects of her cancer treatment. "I have to take tamoxifen daily, get monthly injections, and am in artificial menopause," she explains. "I can't have children, which puts a damper on my dreams. But until I learn what God has planned for me, I will keep serving others with compassion, laughing with my friends and family, and living for this moment every day."


The story on this page was first featured in the book Cancer Adventures, by Marlys Johnson (Copyright © 2008 by Marlys Johnson). Both the story and the photograph are owned by the author and the survivor and are used with permission.


Dean Armstrong

Stomach cancer

My story

When I was diagnosed with stomach cancer in April 2005, it came as a complete shock. I was 48 at the time, and I thought I was pretty healthy. The biggest health problem I had was trouble swallowing. I felt like things got stuck in my throat when I ate. Otherwise, I had no pain. But my wife Patty was concerned. She got me to see a gastroenterologist. He did an endoscopy and found a nasty spot, which he biopsied for testing. When the test results came back, I got the news that it was cancer.
The gastroenterologist then sent me to a local hospital, where I scheduled an appointment for surgery. But Patty and I really didn’t like the way we were treated there. We felt like cattle…just a number.
Then on a Sunday afternoon, the week before I was to have my surgery, we got a call from my sister-in-law. She had seen a commercial for Cancer Treatment Centers of America (CTCA) and thought it was a hospital we should check out. Patty and I called CTCA that day and spoke to an Oncology Information Specialist to learn more. Needless to say, we cancelled my surgery at the local hospital and decided to seek a second opinion at CTCA.
After my insurance had approved me to go to CTCA, Patty and I were on a plane to Chicago within a week to visit the CTCA hospital in northern Illinois. We soon discovered why traveling more than 400 miles from our home in Cortland, Ohio was worth it.

Fighting stomach cancer at CTCA

The experience at CTCA was so different from where I was at previously. CTCA specifically catered my care to me. All along, my doctors were very good at explaining things and keeping me informed. They told me how my tumor markers were doing, how the scans looked, etc. They spent a great deal of time with me. As long as I had questions, my doctors would stay there and give me all of the information I asked for and more. That made a big difference. They were truly concerned about me.
My treatment plan consisted of chemotherapy first, then surgery. In addition, I received radiation treatment. I appreciated how thorough my doctors were with my treatment. I remember telling Patty, “I’ve already had chemo and surgery. Why do I need radiation too?” But then Dr. Eden, my radiation oncologist, explained everything to us. He told me the cancer could come back, but if I received radiation therapy, it would reduce the chances of it returning. That’s all he needed to say to change my mind.
The holistic approach CTCA took to help me fight cancer was much more than simply treating the disease. For example, I learned about what to eat from dietitians. My naturopathic oncology provider also recommended vitamins and other natural supplements to ease treatment side effects and keep me strong. The pastoral care team at the hospital was fantastic too! They prayed with me, which meant a lot.
We were really impressed with the fact CTCA had worked with hotels in the area to set up special rates for patients. Financially that really helped, as did everything CTCA did to set up my travel. When I went through chemotherapy, Patty and I traveled to CTCA every three weeks. For the six weeks I went through radiation treatment, I stayed in the outpatient lodging the hospital offers. Staying there was helpful because it was affordable and close to the hospital. Everyone else staying there was going through cancer treatment too. We motivated each other.

Cancer opened a new door

I feel better now. Everything is good! I leaned on God and my faith to get through it. And I had great support from Patty. She was always there for me. One thing she always said when I needed to go to CTCA for treatment was, “We’re going up for chemo” or “we’re going up for radiation.” She truly went through it with me.
Cancer brought a world of change for me. For a long time, I felt stuck in my job. I felt an obligation to the people that worked there to keep things going, so I stayed. When I got too sick to keep going and managing the business, I got out of the job. Once I got better, I didn’t want to go back. There was a lot of stress and I figured I was ready to move on and try something new. Eventually I started my own business.
Cancer definitely gave me a new outlook to see what’s important, and the important thing is family and doing things you want to do. Money is not important…things are not important.
I firmly believe God still has work for me to do, and a lot of that is giving hope to other people. I am a pastor at my church. To help others, give them hope and let them know there is light at the end of the tunnel is awesome.
Since I completed treatment, I’ve gotten to enjoy some incredible moments in my life. I officiated at my daughter’s wedding. I got to walk her up the aisle, then turn around, stand up there and marry her off too. Patty and I also celebrated our 25th anniversary. In June 2010, I went back to CTCA to celebrate my five-year anniversary as a cancer survivor at the hospital’s annual Celebrate Life® event.
I continue to manage my own electronic security business, in addition to do handyman jobs and woodworking. My life is full of faith and love for my family.






    JUDIE L.

    Stage 2 breast cancer survivor stories can often help women who are newly diagnosed with breast cancer. The Breastlink Angels 2013 calendar shared many inspiring journeys. Judie’s story was featured in the November chapter.

    Judie stage 2 breast cancer survivor stories
    Stage 2 Breast Cancer Survivor Stories – Judie L.

    • Judie L. – Age 73
    • Diagnosis – April 1989
    • Invasive Lobular Carcinoma
    The worst time in my life was when I was diagnosed with Stage 2 breast cancer in April of 1989. The best advice I ever had in my life was when I was told to go to Dr. John West and Breastlink. The journey of surgery, chemo and healing took at least a year. As I learn to survive on a daily basis, my healing continues.
    Being a patient representative at the Center and consulting the newly diagnosed women has been a tremendous growth experience for me. Helping each woman to understand and educate herself with all the amenities available at Breastlink has made me an advocate for the effort to cure breast cancer. Each newly diagnosed woman is a person to guide and comfort through her difficult time. I’ve made some wonderful friendships with “my sisters.” Cancer may well be the worst crisis you encounter, but it can also be the best experience in your life.

    LATE STAGE UTERINE CANCER


    Marianna
    Dorr
    California
    My name is Marianna and I am 61 years old. I am (almost) a three year cancer survivor. I learned I had stage 4 Uterine Cancer when I experienced a huge case of bloating/abdominal pain that sent me to the Emergency Room May 2nd, 2009. Other than this one symptom, I was in the best physical shape of my life. I was cycling up to 13 miles up and power walking my dogs. I was at a healthy weight for my height (140 pounds) and had had two complete physicals within the prior six months. I am fortunate because I was in surgery within 5 days. I had what is called a debulking (empty pelvis) surgery, and a bowel resection. (The cancer had spread to the bowel, abdominal lining, and onto one lung).
    After 25 days in the hospital I began 7 rounds of chemotherapy (Taxol and Cisplatin). I was unable to have radiation therapy due to a colon-vaginal fistula (hole). Also, as a result of the fistula, I had a colostomy in July 2009. (It was to be temporary, but later proved permanent). In July of 2010, I had a recurrence and began 6 rounds of chemotherapy (Doxil and Carboplatin). My last Chemo was January 2011. I have had pelvic exams, scans, and blood tests every 3 months since with no evidence of disease.

    Many people all over the world are diagnosed with cancers and many survive. Some survivors don't mind telling their stories and what they have been through as far as being survivors. Based off these 5 stories some survivors  have positive feedback about what they have been through and how cancer has changed their life in a not bad way. Some survivors tell how their cancer was a negative effect and how it has put them through a lot. Different survivors have similar experiments but different stories and feelings towards having cancer. The survivors are willing to put up a fight!

    Thursday, March 6, 2014

    Cancer Treatment


    Life after vulval cancer surgery

    Your feelings after vulval surgery

    As with most things in life, people react very differently to vulval cancer surgery. Some people manage. But others may feel very upset afterwards, particularly if they have had a big operation on the vulval and genital area. These are very private parts of your body and you may find it very difficult to talk to others about how you are feeling. Your vulva may be very important to your image of yourself as a woman, and your self confidence may be affected. Many women need time to come to terms with the changes surgery may bring.
    The first months may be very upsetting. Many women have conflicting feelings, including
    • Grief
    • Fear
    • Shock
    • Anger and resentment
    These feelings may be mixed with relief that your doctor has found the cancer and you've had treatment. In time, your initial feelings of fear, shock, or anger will almost certainly improve, particularly if you have support from family or friends. If these negative feelings don't go, you may be becoming depressed. Talk to your doctor or specialist nurse if you are worried about this. They may recommend some counselling. This will help you to sort out your feelings and get them into perspective. Or your doctor might suggest a course of anti depressants. This isn't unusual after cancer treatment. It won't be for ever and will help you over a difficult period.
    It is common for women to feel less feminine while they come to terms with this type of treatment. Some have feelings so strong that they describe them as feeling assaulted after their operation. Do contact one of the self help organisations if you feel like this. It may really help you to realise that other women who've been through the same thing feel the same way. And it will get better in time.
    There is a section called your feelings. It describes the different emotions women may have, and how friends, family and others can help.

    Sexuality after vulval surgery

    Vulval surgery will affect your physical ability to have sex. And your emotions may change your sexual feelings for a while. Women generally need to feel happy with their bodies to have a satisfying sex life. One recovered patient said to us that it was certainly possible to have a very satisfying sex life after radical vulvectomy, but not until you've accepted the new you.
    This type of surgery does not affect your ability to become pregnant. But discuss this with your doctor if you are having any other type of treatments such as radiotherapy or chemotherapy. These treatments may affect your fertility.
    After surgery, it can take several months for the vulval area to heal and for sensation in the area to improve. If surgery has caused scarring, your vagina may be much tighter than it was before surgery. You may need to use a vaginal dilator to help stretch it again. If you have had your clitoris removed, it will feel different when you have sex. You may find it more difficult to reach a sexual climax (orgasm). So do not feel you have to rush things. You may not feel like having sexual intercourse for some time but you can still enjoy intimacy with touch and through talking to your partner. Encouragingly, women who've had this type of treatment tell us that orgasm is possible, even if you've had your clitoris removed, but may take longer.
    You may worry about the first time you let your partner see or touch your body again. Some women need time to be alone and come to terms with what has happened. This is very natural and some women want to build up their courage to face someone else – even a deeply loved partner. Others need almost instant comfort and find loving touch will relieve their fear of being rejected.
    If you find it difficult to relax during sex, you may find it helpful to learn how to relax. There are books and tapes that explain relaxation techniques. Contact your local cancer support group – they may have books and tapes they can lend you, or they may have classes at their group. Your specialist nurse or library may have relaxation tapes or books you can borrow.
    Be aware this can be a difficult time for your partner as well. They may not know how to give you the love and support you need so try to involve them in discussions with your doctor about your surgery and how it may affect your relationships. This can have a positive effect on your recovery.
    If you are not in a relationship at the moment, you may feel worried about starting a new one after your operation. Talk to your gynaecological nurse specialist about how you are feeling. You may find it helpful to get in touch with someone who has been through this type of surgery. There are organisations in the vulval cancer organisations section who will be able to put you in touch with someone who has been through a similar experience.
    If you would like to talk to someone outside your own friends and family, look in our page about counselling organisations that can help put in touch with someone. To find out more about counselling look in What is Counselling?
    Arriving home from hospital after surgery can be an anxious time. Coming to terms with all you have experienced and the changes to your body can be a lot to deal with. You may find it helpful to take your partner on your clinic visits before the operation. That way they will be prepared for how you may feel and look when you come home. They may be more able to help support you emotionally if they understand what is planned.

    http://www.cancerresearchuk.org/cancer-help/type/vulval-cancer/living/life-after-vulval-cancer-surgery

    In this article one of the negative effects I noticed is that after the surgery you experience lack of libido. Many women loose interest in wanting to participate in sexual activities. It is possible to have sex but enjoying is a problem many women face. You are still able to have a child after the treatment but your partner may not be willing to. Also after surgery, it causes you to feel different about your body and uncomfortable. Chemotherapy and radiotherapy affect fertility. 

    Wednesday, February 26, 2014

    Look Good Feel Better


    Makeover program helps women battling cancer "Look Good, Feel Better"

    Posted: Feb 04, 2014 5:26 PM CSTUpdated: Feb 05, 2014 8:43 AM CST


    Battling cancer can rob a woman of her energy, appetite and strength. 

    But it doesn't have to take away her self confidence.

    Applying lipstick, mascara and other beauty products is a daily routine for some. For others, it's a new look to inspire a new outlook.

    "Sometimes it can be hard to see such a drastic change in such a small amount of time," explained Erica Williams, 30, who is currently battling breast cancer. "When I was first diagnosed, I didn't tell a lot of people."

    Diagnosed for the first time just days before her 26th birthday, she wasn't one of the breast cancer warriors seen in hot pink and sequins putting those around them without cancer to shame with their seemingly limitless energy, smiles and words of encouragement.

    Erica hid treatment from friends and even some family.

    "I can definitely understand people being withdrawn because at a point in my life it was one of those things I didn't want to discuss with people," Williams said. "I tried to hide for a very long time just because of the stigma of being labeled a sick person."

    When she was diagnosed again two months three months ago she found it harder to hide.

    She was the perfect candidate for a free American Cancer Society program called Look Good, Feel Better.

    It's a guided makeover where patients are matched with products for their skin and taken through a step-by-step application process. 

    Cosmetologist Arline Jackson said the women leave with makeup supplies and new skills but more importantly, they leave with new confidence.

    "From the time we go from the cleansing, the foundation, the eyes the lips and all, and they look in the mirror and think, I did it!" Jackson said. "Right there is the number one home run right there."

    After her tutorial, Erica admitted she almost didn't come. She lost her hair last week and is dealing with acne from the chemotherapy. It was easier to hide. Her mother encouraged her to be brave.  

    "I do feel better," Williams said. "I'm glad I didn't chicken out or back out and I'm glad I came and participated in the makeover and I hope I'll be an inspiration to others to step out there and continue living life because you have to do that."

    For more information on the Look Good, Feel Better program, click here.

    If you or someone you know is interested in participating in a Look Good, Feel Better makeover, you can email us atnewsroom@katv.com.

    http://www.katv.com/story/24635172/makeover-program-helps-women-battling-cancer-look-good-feel-better

    Finish Breast Cancer


    Seventh Annual 26.2 Run With Donna Marathon Looks To 'Finish Breast Cancer'

    It’s a signature event on the First Coast calendar.

    Credit www.breastcancermarathon.com
    The seventh annual 26.2 Run With Donna Marathon will bring big crowds from across Florida and around the world to the Beaches this weekend.
    Conceived by former First Coast News anchor and three-time breast cancer survivor Donna Deegan, the marathon is a major fundraiser for the research, funding and treatment of breast cancer.
    "It has helped enormously as we research the genetic components to cancer," said Dr. Edith Perez, oncologist with the Mayo Clinic.
    Perez says she'll be running right alongside Deegan.
    "I can't get through this day without tears, but it's joyful too," said Deegan.
    First Coast Connect: Breast cancer awareness advocate Donna Deegan and Mayo Clinic oncologist Dr. Edith Perez on the 26.2 with Donna Marathon
    Breast cancer is a leading cause of death among American women, second only to lung cancer. 296,000 new cases were reported last year.
    The full marathon, half marathon and marathon relay will start at 7:30 a.m. on Sunday, February 23. For more information, visit www.breastcancermarathon.com.
    http://news.wjct.org/post/seventh-annual-262-run-donna-marathon-looks-finish-breast-cancer


    Monday, February 24, 2014

    Vulvar Cancer



    Vulvar cancer is the massive growth of a tumor in a woman’s vulva. 


    This article is mainly about how after women are diagnosed with vulvar cancer the loose interest in certain things. After the go through the stages they experience other problems as for as their body and sex life. As far as being in a relationship, after surgery and being diagnosed women are no longer interested in sex due to information from researchers. They undergo many negatives emotions that change their mind about sex. After the surgery most women fear participation in sexual activities.